Objective 1: "Report Card" Survey

The "Report Card" Surveys are now available!!

Click on the GO4KIDDS logos below to access the Surveys:

                                                                

Basic Survey – This parent survey will touch briefly on various constructs, examining the general health, well-being and social inclusion of the child with severe DD and their parents, as well as the important determinants of these outcomes.

Extended Survey – This survey takes a more in-depth look at the same constructs examined in the Basic survey. 

These parent surveys will provide important new knowledge to fill the literature gap about these children and families. The results of these surveys will have clear and direct relevance to individual parents, parent organizations, service providers, managers of health and social services, health care practitioners and policy makers throughout Canada. It is anticipated that many of the constructs included here as brief measures could provide pilot data that will lead to subsequent research projects.

Participants: Parents of children with severe developmental disabilities from across Canada will be eligible to participate.  We include in this group boys and girls, aged 6 to 18 who may have a wide range of diagnoses and, often, multiple disabilities/disorders.  The children we propose to study will have a global intellectual disability, with IQs in the Moderate, Severe, or Profound range.  In addition, many of the children we will study will have: genetic or other syndromes (e.g., Down syndrome, Rett syndrome), physical disabilities and disorders (e.g., cerebral palsy, seizures), sensory system limitations (e.g., deafness, vision impairments), autism, problem behaviour (e.g., aggression, self-injury), and/or mental health difficulties (e.g., anxiety, depression).